The summer of 2009 marked 15 years since I was diagnosed with Hodgkin's disease. I believed at that point there were no major problems from the cancer. I have to take a thyroid medication, but that isn't all that uncommon, and I have a few scars from surgery.
I had had a bone spur removed from my right hip in 2007, but I thought that had more to do with a family history of arthritis. The problem was I never really recovered from that minor surgery. In fact, I seemed to get worse, and both hips began bothering me.
I limped along for two more years wondering what in the world was going on. I saw the chiropractor weekly. She was wonderful, but she was stumped as to why I was having so much trouble particularly with my muscles staying intensely tight all the time. My regular doctor gave my pain pills. And the orthopedic doctor prescribed physical therapy. None of this made me feel any better. By the time I finished teaching my first year of school, I had frequent episodes where my right leg would catch in searing pain and I couldn't move it forward or backward until the spasm passed. My ever- and over-protective mother suggested we go to the Mayo clinic in Jacksonville, Florida, for more testing since we had no real answers from any of the doctors we'd seen here. Being utterly opposed to seeing new doctors, it was a hard decision to make. However, I called and scheduled an appointment for the end of July.
The Mayo clinic is AWESOME. If you are ever in need of diagnosis or treatment, go there. After an initial appointment, the doctors quickly diagnosed my problem with three simple x-rays, which by the way, no one had done at home. I had to have both my hips replaced. Both hips were so deteriorated that one doctor suggested if I didn't have my hips replaced right away I could be in a wheelchair in less than a year. And worst of all (at least to me) the probable reason for the hip deterioration was a particular medicine I took during my chemotherapy. After 15 years, that stupid monster had crept back into my life.
I never truly knew what it meant to be hysterical. However, as I tried to fall asleep that night in the hotel, the thoughts of having diseased bones in my body, giant scars on both legs, cancer stealing my bones, fear of being sick, the unfairness of it all overwhelmed me. At first the tears slowly leaked from my eyes. Before long, the tears were streaming out full force. The sobs were coming so quickly I choked again and again. I couldn't get enough breath to form the screams I wanted to release from my body. I couldn't logically process anything. I just wanted to escape from it all, but there was no way to escape from my own broken body. I can't tell you how long this went on. I know it went on long enough for my mom to transform from sweet and comforting to a drill sergeant demanding that I get a hold of myself. Finally, I went to sleep. I woke up with sore muscles the next day, evidence of the stress I had put on my body.
As broken as I was that day, God took care of me. He moved things so that I was able to see the orthopedic surgeon a week later. Then He arranged things so that there was a cancellation that allowed me to have my first hip replacement by the end of August instead of mid-October. That made it possible for me to be recovered in time to take a teaching job at Elberta Middle School by October 1. Then He changed the schedule again so that I could have my other hip replacement May 24. This worked well because I missed the boring teacher work days at the end of school. And now I have two strong hips to move me forward.
Where I was broken, I am healed. With Thanksgiving less than a week away, I realize how thankful I am for all that has happened and the way it happened to bring me to the point I'm at now. Looking and walking forward without cancer and without pain.
This blog is an attempt on my part to redefine my experience with cancer. I was diagnosed 16 years ago with Stage 2A Hodgkin's disease. I thought I dealt with the disease very well. However, there are so many lingering psychological issue that haunt me. I am attempting to write them out in an effort to change my perception of what it means to me to be a cancer survivor.
Saturday, November 20, 2010
Saturday, November 6, 2010
Rambling Reflections
A few weeks ago I had a big break through when I was able to tell my cancer story to a lady who was worried about her son being diagnosed with Hodgin's disease. I'm very happy to report that he did not have any time of cancer, and that what he did have can be treated easily. I'm very relieved for her, and I'm still proud of myself for speaking up. I know it helped ease her mind as she awaited his diagnosis.
I've spoken at several Relay for Life events about my experience with cancer. I think I've said before that I was very guarded about what I said and that I didn't want to talk to anyone about it afterwards. I also hate walking in the cancer survivors lap. Declaring my survivorship is not something I'm good at. However, I believe there has to be something that I'm suppose to do with this.
I distinctly remember riding in the car with my parents after my diagnosis. We were driving on Fort Morgan Road, and we had been debating about whether I should stay out of school for a year to do treatment and finish a year later. I really couldn't even consider that option. I told my mom and dad that I was going to be an example. I was going to go to school and be drum major. People were going to look at me and know that cancer wasn't an end. I considered myself very strong back then. There wasn't anything I couldn't do.
To look back on that person who was so confident is scary. Somewhere along the way I lost that, and I miss that person. I still have faith in my abilities, but I don't have the faith that someone will notice them. I'm at a crossroads. I feel so strongly that having cancer meant something. I have to believe that it was a preparation for even greater things, but I'm not hearing the message of what those things are. Once upon a time I thought I could make a difference by working for the American Cancer Society. Although it was a fantastic experience, it wasn't the right fit. Even volunteering for the American Cancer Society didn't feel right. I just don't know. It is so hard to want to make a difference but feeling blinded about how. Any ideas???
I've spoken at several Relay for Life events about my experience with cancer. I think I've said before that I was very guarded about what I said and that I didn't want to talk to anyone about it afterwards. I also hate walking in the cancer survivors lap. Declaring my survivorship is not something I'm good at. However, I believe there has to be something that I'm suppose to do with this.
I distinctly remember riding in the car with my parents after my diagnosis. We were driving on Fort Morgan Road, and we had been debating about whether I should stay out of school for a year to do treatment and finish a year later. I really couldn't even consider that option. I told my mom and dad that I was going to be an example. I was going to go to school and be drum major. People were going to look at me and know that cancer wasn't an end. I considered myself very strong back then. There wasn't anything I couldn't do.
To look back on that person who was so confident is scary. Somewhere along the way I lost that, and I miss that person. I still have faith in my abilities, but I don't have the faith that someone will notice them. I'm at a crossroads. I feel so strongly that having cancer meant something. I have to believe that it was a preparation for even greater things, but I'm not hearing the message of what those things are. Once upon a time I thought I could make a difference by working for the American Cancer Society. Although it was a fantastic experience, it wasn't the right fit. Even volunteering for the American Cancer Society didn't feel right. I just don't know. It is so hard to want to make a difference but feeling blinded about how. Any ideas???
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